People think they know what these diseases, "syndromes" are all about by watching the TV commercials. But do they really know? You see I can give you an active account on what these diseases are, and how they can affect you in every aspect of your life, because I live with them!
Drug companies come out with these pills and they say, "oh, take this pill and you will feel better!" Really? Do they suffer from these diseases, as I call them? I think not. If they did, they would know that no pill is going to make you feel better. Problem is, it's not just the pain that inflicts upon your life, it is every other symptom that goes with it! Symptoms that make you feel a complete loss of control in your life when you put them all together. I know because my life seems to be in turmoil all the time from not just the pain, but everything else that goes along with it!
First, yes the pain! Oh the pain.. the relentlessness pain that prevents you from being able to function normally in your life. The constant nagging pain, the aching pain,the stabbing pain, burning pain, the pins and needles, and the sneak up and hit you with a brick pain. The pain that zaps you when it is at such an inconvenient time. Of course any pain is inconvenient, but the zap you pain attacks you like a predator in the night. Then you have the spasming pain! These are the ones that are truly most bothersome for me. The cramping and tightening of your muscles in places that you are unable to stretch out to relieve it! I get them in my neck, face, and around my ribs. These are the ones that oh so take my breath away literally! It doesn't matter if I take their pill, the pains still come! Not as bad as without the pill, but yet they still come and create havoc in my life.
So you see, a pill may have some affect for me, but it is truly not what they pretend it to be. As you watch their commercials, it seems that all you have to do is take their pill and you will have your life back. Not true.....at all. Do they help me? Yes, but it does not allow me to have my life back. Nothing will.
You see, there is no cure. They are not even sure what it is caused from. It could possibly be from a virus that attacks your autoimmune system. Another thing is, which came first, Chronic fatigue syndrome or fibromyalgia? Still a question where the answer is unknown. I remember back as I was a teenager and I think I had it then. All the signs were there. I definitely know I had it in my twenties although I was not diagnosed until my very early thirties. But back then I didn't know anything about it. If I had, I would of brought it up to my doctor then! It seems to take quite awhile to get diagnosed. You have to have had the pain symptoms for I believe three straight months before they would even consider a diagnosis. Usually you went through a lot of docs saying there is nothing wrong, no tests reveal anything so most people where considered somatic, meaning, complains of, but are no real symptoms are present. I know I saw that in my medical records. Don't get me wrong, my doctor is great and does listen to me, he was just doing his job. I did however get diagnosed with depression early on and years before I was diagnosed with Fibromyalgia.
Once I was put on an antidepressant, I did feel a bit better as far as not breaking down in tears for no reason what so ever. I had a little more energy, but not a whole lot. I would go to work and by the time one came around, I could barely keep my eyes open. And it was always a challenge to drive home. My eyes constantly closing, and scaring the crap out of me. Most of the time I could not remember the drive home! Then once I was home, I would hit the couch and sleep till it was time to get up and go to bed. My poor daughter really had to fend for herself because I never had any energy to do anything! I was so tired, and it was beyond just feeling tired, I literally drug myself throughout the day waiting to go home to go to sleep. I slept all the time, but no matter how much I slept, I never, ever, felt I was rested. People thought I was lazy. I should say my family thought I was lazy. I didn't have the energy to do dishes, laundry, or pick up the house. It was a very rough time on my relationship with my husband. Especially since he was neat, orderly, and everything had a place, and had to be lined up perfectly! (Yes, he has his own issues! LOL) Oh that was trying times! But we still managed to make it through.
As I continued with my "somatic complaints", my doctor thought that I was just too stressed out. I had so much going on in my life. I was dealing with a teenager who was into drugs and drinking and in trouble with the law, fighting with my family, dealing with my husbands demands he was putting on me, the "ex", my daughters father, and lord knows what else. He did put me on sleeping aides on and off for a couple years before he decided I had Fibromyalgia. With that diagnosis in hand I still had no idea what was wrong with me, and I could not explain it. I was put on medication to help with the nerve pain I was having, and that seemed to help some. I was relieved that I was not "crazy" as my husband thought I was! But even though I knew what it was, I could still not explain it, and I just looked like I was lazy in his eyes. It was hard to deal with. But I did the best I could and pushed through the pain, confusion, exhaustion, and unwanted advise from others.
I still do that to this day. Push through that is. It is what I have to do in order to make it through a day. While some days are better than others, I still push through. As I continue to explain what I go through, I hope that you will continue to read. If I can manage to reach one person to help them understand, then I will have accomplished what I have originally set out to do. Please continue to read and leave me your thoughts. And remember, I will survive!
To be continued....
Drug companies come out with these pills and they say, "oh, take this pill and you will feel better!" Really? Do they suffer from these diseases, as I call them? I think not. If they did, they would know that no pill is going to make you feel better. Problem is, it's not just the pain that inflicts upon your life, it is every other symptom that goes with it! Symptoms that make you feel a complete loss of control in your life when you put them all together. I know because my life seems to be in turmoil all the time from not just the pain, but everything else that goes along with it!
First, yes the pain! Oh the pain.. the relentlessness pain that prevents you from being able to function normally in your life. The constant nagging pain, the aching pain,the stabbing pain, burning pain, the pins and needles, and the sneak up and hit you with a brick pain. The pain that zaps you when it is at such an inconvenient time. Of course any pain is inconvenient, but the zap you pain attacks you like a predator in the night. Then you have the spasming pain! These are the ones that are truly most bothersome for me. The cramping and tightening of your muscles in places that you are unable to stretch out to relieve it! I get them in my neck, face, and around my ribs. These are the ones that oh so take my breath away literally! It doesn't matter if I take their pill, the pains still come! Not as bad as without the pill, but yet they still come and create havoc in my life.
So you see, a pill may have some affect for me, but it is truly not what they pretend it to be. As you watch their commercials, it seems that all you have to do is take their pill and you will have your life back. Not true.....at all. Do they help me? Yes, but it does not allow me to have my life back. Nothing will.
You see, there is no cure. They are not even sure what it is caused from. It could possibly be from a virus that attacks your autoimmune system. Another thing is, which came first, Chronic fatigue syndrome or fibromyalgia? Still a question where the answer is unknown. I remember back as I was a teenager and I think I had it then. All the signs were there. I definitely know I had it in my twenties although I was not diagnosed until my very early thirties. But back then I didn't know anything about it. If I had, I would of brought it up to my doctor then! It seems to take quite awhile to get diagnosed. You have to have had the pain symptoms for I believe three straight months before they would even consider a diagnosis. Usually you went through a lot of docs saying there is nothing wrong, no tests reveal anything so most people where considered somatic, meaning, complains of, but are no real symptoms are present. I know I saw that in my medical records. Don't get me wrong, my doctor is great and does listen to me, he was just doing his job. I did however get diagnosed with depression early on and years before I was diagnosed with Fibromyalgia.
Once I was put on an antidepressant, I did feel a bit better as far as not breaking down in tears for no reason what so ever. I had a little more energy, but not a whole lot. I would go to work and by the time one came around, I could barely keep my eyes open. And it was always a challenge to drive home. My eyes constantly closing, and scaring the crap out of me. Most of the time I could not remember the drive home! Then once I was home, I would hit the couch and sleep till it was time to get up and go to bed. My poor daughter really had to fend for herself because I never had any energy to do anything! I was so tired, and it was beyond just feeling tired, I literally drug myself throughout the day waiting to go home to go to sleep. I slept all the time, but no matter how much I slept, I never, ever, felt I was rested. People thought I was lazy. I should say my family thought I was lazy. I didn't have the energy to do dishes, laundry, or pick up the house. It was a very rough time on my relationship with my husband. Especially since he was neat, orderly, and everything had a place, and had to be lined up perfectly! (Yes, he has his own issues! LOL) Oh that was trying times! But we still managed to make it through.
As I continued with my "somatic complaints", my doctor thought that I was just too stressed out. I had so much going on in my life. I was dealing with a teenager who was into drugs and drinking and in trouble with the law, fighting with my family, dealing with my husbands demands he was putting on me, the "ex", my daughters father, and lord knows what else. He did put me on sleeping aides on and off for a couple years before he decided I had Fibromyalgia. With that diagnosis in hand I still had no idea what was wrong with me, and I could not explain it. I was put on medication to help with the nerve pain I was having, and that seemed to help some. I was relieved that I was not "crazy" as my husband thought I was! But even though I knew what it was, I could still not explain it, and I just looked like I was lazy in his eyes. It was hard to deal with. But I did the best I could and pushed through the pain, confusion, exhaustion, and unwanted advise from others.
I still do that to this day. Push through that is. It is what I have to do in order to make it through a day. While some days are better than others, I still push through. As I continue to explain what I go through, I hope that you will continue to read. If I can manage to reach one person to help them understand, then I will have accomplished what I have originally set out to do. Please continue to read and leave me your thoughts. And remember, I will survive!
To be continued....
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